Originally a blog to chronicle my adventures with infertility, it now also chronicles my adventures in parenthood.
9.27.2015
Grief and Letting Go
A little over six years ago, I stood here and preached my first sermon while Phil was on sabbatical. It was 2009, and we were still waiting for a child. Still stuck in the darkness of infertility; not knowing if we would ever be parents. It’s been a full and unfathomable six years, filled with more doctors and shots and surgeries than I ever imagined. We had Mira and Patrick and life was complicated and crazy and tiring, but beautiful. But, as most of you know, one year ago today, we lost Patrick to complications caused by his congenital heart defect. Learning to navigate feelings of grief and anger while simultaneously working to enjoy and celebrate Mira’s life has been difficult. We have worked hard to find a new normal, knowing that it will only be normal for a while—until another change occurs.
Over the past year, I tried, unsuccessfully, to ignore my grief and shove it away in the name of functionality. When it refused to be shut out any longer, I struggled with depression, anxiety, and panic attacks. When I allowed myself to feel the grief and anger, I became easily overwhelmed—crying profusely and unable to complete even the simplest task. I experienced word recall problems and memory lapses, making work impossible. I even had brief moments when all I wanted was to have Patrick back in my arms, no matter what it took to achieve that. This is grief. And it’s ugly.
Grief makes us uncomfortable. We don’t want to see people in pain. We want to fix it. Soon after a funeral, lives return to normal, and we just sort of expect everyone else’s lives to go back to normal as well. Have you noticed that the Gospels don’t really deal with grief? Jesus dies. Then what? How do you imagine Mary got through the day? Her son is dead—considered a criminal; murdered by the state. Does her community help her, or shun her? Nothing tells us how she moves forward. Or we’re supposed to move forward. How do we go on?
People would ask how I was doing, but there were no words to explain, so I lied and said I was fine, or sad, or “just hanging in there.” Most people did not want to hear the truth. I felt the anguish of the psalmist:
Be gracious to me, O Lord, for I am in distress
my eye wastes away from grief,
my soul and body also.
For my life is spent with sorrow,
and my years with sighing
my strength fails because of my misery,
and my bones waste away.
Because of my [grief],
I am the utter contempt of my neighbors;
I am a dread to my friends
—those who see me on the street flee from me.
I am forgotten by them as though I were dead
I have become like broken pottery.
And it hurts. We discover that there are some who cannot bear witness to our grief and others, usually those we least expect, step up and sit with us and help make life bearable while we learn how to pick ourselves back up and do the small things like breathe or shower or eat.
During grief, time passes in this strange fashion of quick and slow all at the same time, and I suddenly found myself nearing this one year anniversary of Patrick’s death with no idea how that year had passed. And I’m not done grieving. I’m not sure I ever will. But. I’m on the road to acceptance. Acceptance doesn’t mean no more hard days, or angry days, or sad days. It doesn’t mean that I’m done. It just means that most of my days are good. In the language of my day job, it is more likely than not that today will be a better day.
As I have emerged from the fog of grief, I have begun to figure out what I’m supposed to do now. Different ideas have percolated, but most of them have made me anxious because they all fall outside my comfort zone. “I can’t do that!” I tell myself. But if I’m honest, it’s that I don’t want to do it. The ideas would require more work, more discomfort, or expenditure of more time and energy than I feel ready for. I’m scared. The ideas involve risk, and I am a risk-averse person.
In my fear and discomfort, I have been reminded that everyone feels that way. Jonah was clearly called to be a prophet, but he made himself miserable trying to avoid doing the work God called him to do. Moses was called to guide and care for others in a new place, feeling unsure of himself, but having to be the adult to an entire nation.
Like Jonah and Moses, we are all called to do God’s work. Like Jonah, we hide. We run. Like Moses, we fall short or fail. We misunderstand. Moses even tells God, “Oh my Lord, please send someone else.” It is a comfort to me that even Moses, one of the best of God’s people, was imperfect and felt unworthy and not up to the challenges to which he was called. And yet, ultimately, Moses goes. Even Jesus submits to God’s will. “Not my will, but thine be done.” We, too, must try. We must let go. We must submit.
Now, here’s a dirty little secret. People will tell you to let go and let God. I just did. And we mean well. Because the truth is, when you’re ready to let go, it will be freeing. But if you’re not ready to let go, don’t. Letting go before you’re ready means spending a lifetime trying to pick it back up. So hold on. Hold on until you know that letting go is your best option. Even then it won’t be easy. Letting go is still a huge leap of faith. No matter when you do it, it is likely to feel scary. But, more often than not, when something feels scary—if it requires you to leave your comfort zone—God is calling you out because He is doing a new thing.
So this is me—doing the scary new things God has called me to do. I am turning my blog into a book in the hope that my journey will help make someone else feel less alone or make their path a little easier. And today. This sermon. This sharing of my journey with you. See, preaching—any public speaking really—is not my thing. I’m a writer. But through all of this, I have been called to share my story. So this is me—taking my leap of faith—letting go and letting God.
Thanks be to God. Amen.
9.06.2015
The Scariest Thing I Have to Do
8.20.2015
Making Progress
I visited my doctor recently, and I have finally been able to remove meds rather than add them. We halved my anti-depressant dose and removed the Abilify and Ambien. It took about six days to wean off the Ambien, and my sleep pattern isn't completely back to normal, but the fact that I can sleep without the meds is fan-freakin'-tastic.
I also went on a writing retreat this week and finished editing my book (it comes in at a whopping 410 pages). The hardest part wasn't the editing; it was when I began reading the entries starting around last July. Seeing what we were doing this time last year; how we were making plans; trying to figure out our bifurcated life and seeing what we could do to make it work because we thought we needed a long-term solution. We believed Patrick had a future. Seeing the hope I had. The fear. The naivety. Reading those entries again was gut wrenching. It made me cry, but I wasn't a functionless puddle. I was still functional. I could still edit. And yet, I wasn't blocking the feelings. I let myself have them. It felt like real progress.
In other news, I am starting back to work in mid-September. I am really excited to see my co-workers and finally feel like a productive member of society again. Phil and I have found a house to buy that will give us a fresh start, Mira has given the house her seal of approval, and we should be closing in October.
Fall is coming. It's going to be full, but I'm feeling optimistic. As Phil and I like to say, "We're standing up and looking forward." Not to mention, pumpkin everything is coming. :) So, here's to my progress. Let's hope it continues.
8.16.2015
I Dreamed of You
I Dreamed of You
I dreamed of you last night;
that you were here with me.
I held you in my arms again
and rocked you fast asleep.
Closed eyes framed with lashes.
Your soft, contented sighs.
My heart swelled with maternal love
that made up for your cries.
Your small but wild patch
of red and curly hair
matched with a wicked grin and laugh
you never failed to share.
You wore a hooded shirt
of sea foam green and white.
It almost hid the cannula
that wrapped your face so tight.
You were alive again.
Just like in your last days.
I was so sure that it was real,
so piercing was your gaze.
Instead, it was a dream
But one I'm glad I had.
I got to feel your love again,
although it made me sad.
And though sometimes I'm broken,
and struggle with dismay.
Knowing you still watch over me
helped get me through my day.
8.09.2015
Untethered
Untethered
I tried to put down deep roots.
I thought that they were strong.
Until the wind uprooted me,
And taught me I was wrong.
Like a kite, free of its flyer;
Like a tent, with pegs pulled free;
I have become untethered,
From the life I built for me.
My thoughts are unrelenting,
Regardless of their truth.
I hope things will get better,
Although I have no proof.
So, with a faith that's shaken;
With a heart shattered and frail;
I try again to take root,
Before the next wind gale.
7.18.2015
The End of the Ride
6.06.2015
Memories and Social Media
One of the other interesting things it can show us is patterns. Earlier this year, I had noticed that May 23 has been the day that my iris first bloomed three of the last six years. Maybe flowers do have internal clocks! But, as interesting as I found that, today's FB trip down memory lane was far more thought provoking.
First, FB showed me something which I already knew--last year today, Patrick had his second open-heart surgery. He did so well, and the surgeon was pleased, and our world was filled with hope. Two years ago today, we were in the OB-GYN's office and found out we were having a boy. Just two years--it feels like so much longer than that already. What floored me, though, was looking at the flippant comment I had made that day:
At doc's office for the anatomy ultrasound. Any guesses on boy/girl? We're just hoping for 2 pulmonary arteries. ;)It was a joke. And, even now, I still get the light-hearted way I meant it. But my brain, the irrational, judgy part that thinks I control the universe, stuck in its two cents. "Did you do this?" it quietly accused me. Did I? Did my imprecision and failure to say two "normal" pulmonary arteries do this? My rational brain assures me it did not. Of course not. My irrational brain, however, points out that I said we just wanted two pulmonary arteries--and we got that--they just weren't connected properly. "Well," my rational brain shoots back, "If we're talking about getting what we asked for, we asked for no heart problems, and we didn't get that." The sneaky, guilty part says slyly, "God doesn't grant every wish. You should be more careful what you wish for."
It's a horrible "game." One that, I imagine, we all experience at one time or another. In talking with others who have suffered miscarriage or had children with CHD, we have all spent at least some time fixated on what we could have done differently, berating ourselves for how this must somehow be our fault. And, as well as the doctors do to convince us otherwise, new research undercuts their assurances. Indeed, a new study into the causes of CHD suggests that for older moms (read, "like me"), the chances of your child developing a CHD are decreased by exercising. Crap. So now this is my fault. And since there seems to be a genetic component to it, I--that is to say my genetics--bear some responsibility for the outcome.
Without belaboring the point (too late), I love the ability to go back and see memories on social media. I just have to beware of the traps that lay therein: 20/20 hindsight; and the belief that I was ever in control in the first place. Go, and do likewise--and have fun out there :)
5.25.2015
The Beauty is in the Mix
5.15.2015
I (Still) Choose You
We suffered the loss of five grandparents and Phil's mentor. We became an aunt and uncle to five wonderful nieces and nephews. We survived three moves; law school; infertility and four rounds of IVF; difficult pregnancies; miscarriage; having children; discovering our children have CHDs; seven surgeries and five heart caths in just three-and-a-half years for said children; the death of one child; and the chronic disease and ever-present specter of death with the other; all while living in a fishbowl as a pastor's family.
Looking back at just the last eight years, it's no wonder we're suffering depression and anxiety. We have been living in survival mode. Even if we have a moment to discover what our needs and whether they are being met, we keep our mouth shut so as not to disturb the delicate balance that gets us through the day. There have been times recently when we weren't sure we were going to make it. Even now, there are no guarantees. We just keep taking things one day at a time and checking in with each other. But, it's been worth it.
We share a love of stories--books, televisions shows, movies. We are movie buddies. We've seen Avengers, Sherlock Holmes, Star Wars I-III, Love Actually, Despicable Me, and countless other movies together in the theater. We have begun taking Mira to the movies and get to share those experiences. We have attended GenCon and share our love of board, video, computer, and roleplaying games. We have our own language. We will hear something that will trigger the same wrongity-wrong answers in our head at the same time. We can say a single word and the other person knows exactly what we are talking about. We have invested lots of time and energy and love in each other and, honestly, neither of us wants to break another person in.
We get to go out for our anniversary this year. It's quite an exciting prospect given how other anniversaries have been spent. Our first anniversary, Phil let me fly home by myself to attend my grandfather's funeral. Our second anniversary, Phil was in the hospital with a dear friend and church member who was having surgery. Last year, I was in the PICU with Patrick as they readied him for his G-tube surgery. Four years ago, we were in the process of discovering Mira's CHD. That's not to say we never get to go out. Two years ago, when I was pregnant with Patrick, we got to see Carol Burnett live. Five years ago, Phil officiated a wedding on our anniversary. This year, we're eating at our favorite restaurant and get to spend the night in a hotel and SLEEP IN! Chalk another one up in the good pile!
What I'm trying to say is that marriage is hard. For everyone. Even if the hardest thing you deal with is figuring out how to share because you were both only children, the adjustment and commitment to a single person for the rest of your life will always be hard. There will always be moments when you want to throw in the towel. Literally. I was angrily tossing laundry in the dryer the other evening and the voice in my head was shouting at me to just go upstairs and call it off. But you can't unring that bell. Once it's out there, it colors just about everything going forward. Take a breath. Take a walk. Lock yourself in the bathroom for a five-minute breather. Go to counseling--alone, together, or both. But don't assume that just because it's hard you're doing it wrong, or that there isn't enough love in your marriage to make it work.
My marriage, my family, my life, is worth keeping. It's worth fighting for. We've been through Hell, but we have stayed true to our vows. We've seen better and worse; affluence and scraping by; Melting Pot and ramen noodles; sickness and health. Every day we get the same choice--whether to keep choosing this life together. And today, although in many ways it is just another day to make the same choice, it's the anniversary of our public proclamation of that choice. And looking back at all we survived, all we've built together, all we've experienced, I'm reaffirming my choice.
Heart of my heart. We're in this together. I've got your back. Madly, magically, always.
3.25.2015
On Brokenness and Healing--Without and Within
3.01.2015
My Body, My Fitness
2.18.2015
Better Safe...
Then, sometime last month, I started noticing that I was having chest pain when I lay down at night to go to bed. Since it didn't happen every night or last too terribly long, I assumed it was heartburn--even though it didn't feel like the heartburn I had when I was pregnant.
With my 40th birthday on the horizon, wanting to lose some weight, and knowing that physical activity can help release pent-up emotions, I got a membership to our local wellness center and began working out. I began to feel nauseous during one of the classes I was taking, so I stopped doing those and went to just doing the elliptical. Well, last week, I began having chest pain during my workout that didn't go away until I was done working out. It's not horrible pain, but it's sharp and nagging. Still, I convinced myself it was nothing.
Then I got emails, Facebook posts, radio and television commercials, all over the course of two days, discussing how the signs of heart attacks in women are different than for men and include things like back pain, nausea, and what not. My mind began to wander and wonder--was this a message for me? I thought about the fact that both of my kids had CHD and that there appeared to be a genetic component. That would mean there's at least a 50% chance that the issue is from my genes, in which case there could be something going on with me. I've had high cholesterol forever--even in college when I was 18 and weighed 150, my cholesterol was 206. I'm certainly overweight, and I've had my ovaries removed. All of these things increase the chance of heart attack.
I also have a family history of heart disease. My grandmother was convinced something was wrong even though all her tests came back okay. They finally took her in for a heart cath and couldn't even get the angioplasty balloon in, so she had quadruple bypass surgery; but she never had a heart attack thanks to her persistence. I began to worry. Still not enough to go to the doctor, but it was in the back of my mind.
Not until I woke up today with a sinus headache, mucus for days, and a general blah feeling, did I decide I needed to go to the doctor about this. After antibiotic and steroid shots for the bronchitis, I had an EKG. The good news is, it was completely normal. The bad news is that all of my symptoms sounded very cardiac to the doctor. And, given my grandmother's history, I was not reassured by the EKG. So, the doctor sent an ASAP referral to a cardiologist, and I am waiting to hear back about when I can get in.
It is unlikely that anything is wrong. It is highly likely that it's stress, on top of stress, on top of grief, on top of stress. But, my family has already been through enough, so I'm getting it checked out. I don't want to find myself in the hospital, or the great beyond, thinking "woulda, coulda, shoulda." It's time to step-up the taking care of myself stuff. Better safe, than sorry.
1.27.2015
On Grief, Metamorphosis, and Self-Excavation
What with my own personal grief; seeing friends in pain with various losses and grief of their own; feeling like things in the world are getting worse rather than better; not to mention the whole snow/winter/cold yuckiness that is January in Michigan, I am overwhelmed with sadness and despair. I am done. Empty. Spent. Broken. I have nothing left. It's not that I don't care. Rather, I care so much that I have no energy left to care at all. I am tired of being a responsible adult. I want permission to be weak, but then rage against any perceived weakness as a failure of the strength label I pridefully own. I want to run away for a while. Explore the world. Excavate me. But I can't. Not yet, anyway. I have made too many commitments. Obligations. Maybe later.
I am tired of worrying all the time. Tired of being afraid. What is this weird new bump on my finger? Is my extra weight killing me? Are Mira's pressures getting worse? Am I a failure for having a messy home? Have I failed my family? My spouse? My children? Do I worry too much? Is it depression, or grief, or both, or neither? All this worry sucks was what little energy I manage to acquire. Ain't nobody got time for this. Where is my joy? What happened to the woman who could do anything she set her mind to? Who achieved so much educationally, professionally, personally? I miss her. I need more smiles. More hugs. More laughter. More beauty. More stillness. More free time.
As an introvert, I need time away. But I am already so isolated; so alone. Being out in busy places with people I don't know just makes it worse. I need one-on-one time in quiet, familiar places with just a few people who can help fill my energetic bucket. Who won't judge me. Who don't care how I look. Who don't have a vision of me that will shatter if I name my truth. Who can take me away for a while. Who can bring me back to to myself.
I need help. I don't know what kind. I just know I don't want to hurt. I don't want to cry when I see babies. I don't want to envy someone else's life. I don't want to be alone. I don't want to feel overwhelmed. I don't want to feel different, or unworthy. I want to feel connected. Loved. Valued. Valuable. Worth the space I take up. But not because other people tell me so--that can be taken away. No. I want to know it to be true, deep in my bones. Know it with every breath. Feel it. Remember it. I want to be so caught up in the joy and love of my life that I am not threatened by what others have; what I don't have. I want what I am and what I already have to be enough.
How do I get there? What must I do? Excavate me? By making time? By making me a priority? By making me an obligation? Oh. I guess that makes sense. How can I feel worthy and valuable if I refuse to value myself enough to make time for what I need?
This is where I am going. Do you want to come with me? It's okay if you don't. I just can't stay stuck in this hole anymore, trying to find happiness in food, stuff, and other people's validation. I can't stay the same, even though I don't know what I will be when I come out the other side. Change is scary and difficult. It hurts. But, quite honestly, it hurts to stay where I am, too.
I can't promise that you'll still like me. In fact, ultimately, that's up to you. I can promise that I intend to like myself--to enjoy my own company--and that I will work to embody kindness, joy, patience, acceptance, strength, and love. I have no idea where I'll end up, but I will share my journey with you. You can find me here.
#Truth2015
1.12.2015
Picking My Battles
I admit that there is a LOT more that needs to be done, and many more areas for improvement. However, there's only so much energy to go around, and fighting myself all day every day uses most of that up. The result is that some things have to slide. My main area of failure--healthy eating. It's never been much of a priority for me to begin with and--let's face it--I'm still grieving and food is one of my main comforts. Moreover, having added exercise to the mix, my bad eating will not be *as* problematic, and it sure as heck beats out-of-control-spending. So, I'm not working on the food stuff. Not yet, anyway. Instead, I'm picking my battles. I know me. If I try to take on too many things at once, they will all fail. Each one will receive less of my attention than it needs to be successful, and I will quit them all. I have chosen to focus my energy on self-care, exercise, and work. These three things are my top priorities. Once I have managed to get these things to the point that they are automatic, I will attempt adjustments in my other bad habits. It's not ideal, but I would rather succeed at adding exercise than fail at changing both food and exercise.
And, at least on the exercise front, I am proud to say that I am making progress. I have completed seven workouts since the first of the year; my scale told me I am 9 pounds closer to my goal weight; and I am able to exercise for longer before feeling tired (although the whole back pain thing has been putting a cramp in my efforts). It's not a perfect plan, but I am not perfect--in fact, I'm actually working on remembering that perfection is unattainable.
This is my truth. Your mileage may vary.